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Chiari Malformation and Related Disorders: Spread Education, Research and Awareness

Created by C.H. on December 02, 2012

We petition the Obama Administration to help us educate the medical community about Arnold Chiari Malformation and the related conditions it can cause. Surgery is the only treatment available to correct functional disturbances or halt the progression of damage to the central nervous system, yet most neurosurgeons do not understand the condition. In fact, there are only a handful of them in the United States that DO understand Chiari. We want to see mandatory awareness for Chiari with pediatricians, general physicians, and specialists. The Social Security Administration made more aware of our illness, so those who cannot work, are eligible for disability. We would also like government funded research, to help find a cure for those of us who suffer with this life-altering condition.

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