This day has been set aside by thousands of families to bring awareness to a birth defect called Omphalocele. This is an abdominal wall defect in which the internal organs (typically liver, intestines, stomach, spleen and others) form outside the body and the muscle wall fails to close. This condition affects 1 in 5000 babies in the form of a small omphalocele and 1 in 10,000 babies will have a giant omphalocele. As parents, the diagnosis can be devastating and many doctors often recommend termination. By declaring a National Day of Awareness we can reach those families who feel alone and without hope and let them know there is support available so they don't have to take this journey alone.



