This is historical material “frozen in time”. The website is no longer updated and links to external websites and some internal pages may not work.

Declare sickle cell decease a natuonal health priority and support legislation to explain and establish SCD programs.

Created by M.R. on October 19, 2014

Sickle Cell Disease (SCD) is Real!

SCD is a major public health concern causing critical healthcare impacts in the nation.

Reauthorization of the Sickle Cell Treatment Act – Bill H.R. 5124 will expand the national newborn screening program, develop a comprehensive adult transition program, continue public surveillance, expand research efforts and establish up to 25 sickle cell treatment centers throughout the US all in an effort to support the creation of a sustainable comprehensive model of care for individuals affected by SCD.

We request acknowledgement and declaration of SCD as a national health priority; support of legislative Bill-H.R. 5124 and return funding for SCD programs in the President’s budget.

Sincerely

SCDAA & SCD Community

sicklecelldisease.org

Health Care
Return to top