FIBROMADNESS uses its day-to-day work for and with patients to inform our public policy agenda. The FIBROMADNESS GOAL has two main goals: to redefine the definition of "disability" to include chronic illness; and to ensure that public policy debates about health care and health care finance reform include the voices of patients with chronic diseases.
Since patients with chronic diseases have more interaction with the health care system than any other group of people, if there is to be meaningful health care reform, patients with chronic illnesses must have a place at the table. Right now, that is not happening.