Identify and assist the research and resources available to family members that have are diognosed with Jacobsen Syndrom

I was told this past onth that I would be a father to a wonderful little boy. The catch t this was that my little boy will have jacobsen syndrom. I would like the Obama Administration to set asside funds to support families that have children with disabilities to insure they recieve the best care possible and are not subject to low living conditions due to lack of funding. I would like for the administration to also send funding to Duke Medical Hospital to research on this syndrome to insure they are able to do more for others in the future.