Skylar is an amazing 7 year old who just celebrated her 8th birthday. She was born with a very rare birth defect called Schizencephaly. In the past 8 years, she been diagnosed with seizures, failure to thrive, cerebral palsy, profound development delay, dysphagia, multiple food allergies, central adrenal insufficiency, cortical blindness, and hydrocephalus. She’s been in and out of the hospital her entire life. She does not talk or walk, she is unable to sit independently, and she requires 24 hour care. However, she is the happiest girl in the world. Despite what she has been through she is continuously laughing and smiling and she has a laugh that will melt your heart. Her mom has made a bucket list to fill before she dies, one being to visit the White House. Please help her get there.
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