Help those in need of income to assist in supporting their families.
A lot of doctors dismiss the severity of these diseases without just cause making families and patients suffering. Allowing the disabled persons to quit worrying about having to afford medicine would greatly help.
Think about having cataplexy or a sleep attack and driving. Oh you just wrecked and killed a family. Meds to reduce this are astronomical in price, but assist in allowing one to drive without losing consciousness.
Think about playing soccer, basketball, or any other sport with your family. Oh your hip dislocated or your knee just out. Hospital here we come. The meds to assist with EDS pain and the braces to help someone continue to walk are not cheap.
Families facing these illnesses need assistance.