Despite being underdiagnosed or misdiagnosed, most have never heard of SPS. SPS affects an estimated 330 people (1 in 1 million) in America causing gait disorders leading to stiffness then spasms or seizures of the entire body. SPS affects people of all ages and can make it difficult to perform simple tasks such as walking, talking, eating, drinking, and even breathing. There is currently no cure for SPS and it is not unusual for people to wait at least 7 years for a diagnosis. Having an officially recognized awareness month will bring much needed attention to this syndrome and hopefully lead to a quicker diagnosis, more research, better treatments, and some day a cure allowing for a better quality of life.
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