Hi my name is ChyAnn. In September 2011, I was diagnosed with a rare disease called Lupus (SLE) with nephritis My life changed drastically when we learned that I had lupus. My mom was really surprised because Lupus is supposedly not inheritable; but my mom had Lupus and she learned that her great grandmother had Lupus also. When I learned that I had been diagnosed with lupus I was 10 years old, just starting 5th grade. It was the hardest months of my life. I felt alone not being able to do all the things the other kids could do, getting tired so fast and feeling weak. Having no idea how I would feel in the morning, it wasn't fair or right. I thought everyday "Why me"? What did I do to deserve this. It was horrible. All I want is a little more research done please help.



