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Offer Federal funding for research to cure HHT, an often misdiagnosed genetic disorder that strikes 1 in 5000 people

Created by J.N. on March 29, 2016

About 1 in 5000 people have HHT, but the vast majority of them don't know it. HHT presents as a nosebleed, but the danger is in the underlying cause of the nosebleed: malformed blood vessels that can occur in the brain, lungs, liver and the intestine. People with HHT just think they are having nosebleeds and are unaware of the danger lurking inside their bodies. The malformed blood vessels are called AVM's and if they should break, death from blood loss very often follows. HHT is treatable in that sometimes the AVM's can be removed, but not always. Often, the nosebleeds themselves can be life threatening. Cauterization is only a stop gap measure. This is a degenerative disorder. Since the body is always growing blood vessels, HHT only gets worse. Please set aside funds to combat HHT.

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