Hydranencephaly is a rare neurological condition, knowingly occurring in fewer than 1 in 10,000 births across the globe, in which the brain's cerebral hemispheres are absent and replaced with sacs of cerebrospinal fluid. There is no known cause, no cure, and very little optimism available for those diagnosed. Families are stripped of every ounce of hope by those they trust the most, medical professionals. Through personal accounts and research, we became believers in the possibilities rather than the medically subjected impossibilities. Global Hydranencephaly Foundation (www.hydranencephalyfoundation.org) is on a mission to reach these families and ensure quality of life for those touched by this diagnosis. Awareness is essential for giving these children a chance at the life they deserve.
This is historical material “frozen in time”. The website is no longer updated and links to external websites and some internal pages may not work.
