There is an urgent need for funding for Rett syndrome research to develop new and effective drug therapy treatments and a reversal for this devastating disease. Currently we do not have effective drug therapies to adequately treat or reverse Rett syndrome. Rett syndrome is a neurodevelopmental disorder that affects one in every 10,000 to 15,000 live female births. It is characterized by early normal growth and development followed by a slowing of development and regression, loss of purposeful hand use, loss of verbal communication skills, slowed brain growth, problems with walking, seizures, and intellectual disability. Research has shown that Rett syndrome can be reversed in mice. Gene therapy is also showing promise. We need funding help from the government now to help our children.



