This is historical material “frozen in time”. The website is no longer updated and links to external websites and some internal pages may not work.

Recognize that Chiari Malformation is a debilitating disorder that is disabling.

Created by D.B. on September 12, 2013

We are asking that serious consideration be given to adding Chiari Malformation to Social Security's list of "Automatic Qualifiers". Chiari is a malformation of the cerebral tonsils and results in a herniation of the brain. Its affects are devestating. Though the Chiari Community is becomng more united in making our cause known, medically speaking, we are still often, undiagnosed, misdiagnosed, or worse..untreated because of a lack of both knowledge in the medical field and lack of insurance. Countless sufferers of this illness were once insured, productive and self sufficient members of society. Now, due to the effects of this illness many are left unemployed, uninsured, and untreated. We are asking that Chiari Malformation be added to the Social Security Disability Blue Book.

Civil Rights & Equality
Health Care
Economy & Jobs
Return to top