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Recognize Ehlers Danlos Syndrome: Create awareness & Have EDS recognized as a disability.

Created by R.S. on January 03, 2013

Ehlers-Danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.

Possible complications of Ehlers-Danlos syndrome include:

Chronic joint pain

Early-onset arthritis

Failure of surgical wounds to close (or stitches tear out)

Premature rupture of membranes during pregnancy

Rupture of major vessels, including a ruptured aortic aneurysm (only in vascular EDS)

Rupture of a hollow organ such as the uterus or bowel (only in vascular EDS)

Rupture of the eyeball

This is a debilitating, progressive issue that the medical field barely acknowledges. It needs to be considered a disability, but that's not going to happen until we make our voices heard.

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