Lupus Foundation of America has yet to my knowledge ever had a public service announcement on TV or on radio yet they have them on the internet. Few people truly know or understand what Lupus is and how it effects a person and that the disease ranges from mild to very serious and that people can die from Lupus Lupus does not have a standard protocol of treatment - and basically we lupus patients have been human guinea pigs being given drugs for other diseases "off label".We are given chemo drugs given to cancer patients, anti organ rejection drugs given to patients who have had transplants and given antimalarial drugs yet we have none of those conditions.The only drug ever invented just for us is Benlysta and many insurance company formularies won't cover it because it. We need a CURE!
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