It has been over 40 years since the Sickle Cell Anemia Control Act was signed into law from which the National Sickle Cell Disease Program was established. In 1972-73 the National Heart, Lung and Blood Institute, NHLBI began funding the comprehensive sickle cell centers. In 2008, through restructuring by the NHLBI these centers were eliminated as a new direction was taken with the "Recommitment to Sickle Cell Disease Research". About $20 million per year was lost in the process and we are left waiting for a CURE for SCD. Researchers are eager to find the cure! We urge President Barack Obama to reestablish the Comprehensive Sickle Cell Centers so that we can move further and faster toward a universal cure for sickle cell disease for the 100K US children and adults that live with pain.
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