Chiari Malformation is one of the top 10 weirdest conditions. There is no known cure & there is a lack of funding for researching treatments that work. Currently, the only options offered are Brain surgery & pharmaceuticals that make us worse. Chiarians struggle for years just to get a proper diagnosis, labeled with conditions they do not have, permanent damage from the lack of success of the surgery & are sensitive to Pharmaceuticals. Many do not make it back to a life they knew before Chiari. We the patients end up educating the medical community, family & friends because no one has heard of Chiari. Still we are not believed. Insurance companies deny treatment because Chiari is not common. I have watched my friends die & struggle. We are Warriors but, we shouldn't have to fight so hard
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